Ịmatakwu banyere cystic fibrosis, Passeportsanté.net na-enye nhọrọ nke mkpakọrịta na saịtị gọọmentị na-emeso isiokwu nke cystic fibrosis. Ị ga-enwe ike ịhụ ebe ahụ Ozi Mgbakwunye na kpọtụrụ obodo ma ọ bụ na-akwado otu na -enye gị ohere ịmatakwu banyere ọrịa ahụ.

akara

France

Na-eti cystic fibrosis

Emebere na 1965, mkpakọrịta a na-achọ ịkwado ndị ọrịa na ezinụlọ ha gburugburu ọrụ anọ: ọgwụgwọ, nlekọta, ibi ndụ ka mma, na ịkwalite mmata. Ọ na-akwadokwa nyocha nke ọma.

Gregory Lemarchal Association

Tọrọ ntọala na 2007 na-eso ọnwụ nke onye na-ese ihe Grégory Lamarchal na-ata ahụhụ site na cystic fibrosis, mkpakọrịta a na-achọ imeziwanye nkasi obi na ịdịmma nke ndụ nke ndị ọrịa na ịkwalite mmata maka inye onyinye akụkụ ahụ.

Njikọ-gregorylemarchal.org

Canada

Ụlọ ọrụ Cystic Fibrosis nke Canada

Tọrọ ntọala na 1960, ntọala a na-enye ego nyocha n'ime cystic fibrosis. Ebumnuche ntọala ahụ bụ ịnye akụrụngwa na ozi iji gwọọ yana jikwaa ọrịa a nke ọma. Broshọ dị n'ịntanetị ma ọ bụ n'usoro, na bekee na French cystic fibrosis.ca

Cystic fibrosis Quebec

Njikọ a na-achọ inyere ndị nwere cystic fibrosis aka na Quebec, na nkwekọrịta na Canadian Cystic Fibrosis Foundation.

aqfk.qc.ca

Kọmitii mpaghara maka ndị okenye nwere Cystic Fibrosis

Emebere na 1985, Kọmitii mpaghara maka ndị okenye Cystic Fibrosis (CPAFK) na-achịkọta ihe karịrị ndị okenye Quebec 500 nwere cystic fibrosis. Nke a bụ kọmitii nkwado nke nwekwara ebumnuche ịkwalite na ịgbachitere ikike na ọdịmma nke ndị okenye nwere cystic fibrosis na Quebec.

cpafk.qc.ca

Akwụkwọ ntuziaka ahụike gọọmentị Quebec

Iji mụtakwuo maka ọgwụ ọjọọ: otu esi ewere ha, kedu ihe bụ contraindications na mmekọrịta enwere ike, wdg.

www.guidesante.gouv.qc.ca

Belgium

Ndị otu Belgium maka ọgụ megide Cystic Fibrosis

imi.be

Swiss

Otu Switzerland maka Cystic Fibrosis (SFCH)

cfch.ch

United States

Cystic Fibrosis Foundation

cff.org